Learn About Clinical Trials





 

Learning About Clinical Trials

Understand your options and discuss with your doctor.

ACT Clinical Trials Matching Service: (877) 970-7848

Why consider a cancer clinical trial?

What clinical trials can offer, from the care you receive to the impact you can make.

Clinical trials offer a chance to receive investigational medicines or procedures that experts think might improve the treatment of cancer. This important option is not limited to people who have run out of choices. In fact, there may be clinical trials for every stage of disease in dozens of cancer types. In this video, patients and doctors share their perspectives on why joining a clinical trial may be an option worth considering.

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“To have the opportunity to go on a clinical trial for a patient is extremely exciting.” —Sandra Swain, MD; oncologist

Common cancer clinical trials concerns.









 
Concern:
I don’t want to be a guinea pig for an experimental treatment.
 
The Truth:
Cancer clinical trials are developed with high medical and ethical standards, and participants are treated with care and with respect for their rights.
 

Concern:
I’m afraid i might receive a sugar pill or no treatment at all.
 
The Truth:
Cancer clinical trials rarely use placebo alone if an effective treatment is available; doing so is unethical.
 

Concern:
Cancer clinical trials are only for people with no other treatment options.
 
The Truth:
Trials can study everything from prevention to early- and late-stage treatment, and they may be an option at any point after your diagnosis.
 

Concern:
I’m worried that I won’t receive quality care in a cancer clinical trial.
 
The Truth:
Many procedures are in place to help you receive quality care in a cancer clinical trial.
 

Concern:
People might access private information about me if I participate.
 
The Truth:
In nearly all cancer clinical trials, patients are identified by codes so that their privacy is protected throughout and after the study.
 

Concern:
I’m afraid that my health insurance will not help with the costs of a cancer clinical trial.
 
The Truth:
Many costs are covered by insurance companies and the study sponsor, and financial support is often available to help with other expenses; talk to your doctor to understand what costs you could be responsible for.
 

Concern:
Informed consent only protects researchers and doctors, not patients.
 
The Truth:
Informed consent is a full explanation of the trial that includes a statement that the study involves research and is voluntary, and explanations of the possible risks, the possible benefits, how your medical information may be used, and more. Informed consent does not require you to give up your right to protection if the medical team is negligent or does something wrong.
 

Concern:
I’m afraid that once i join a cancer clinical trial, there’s no way out.
 
The Truth:
You have the right to refuse treatment in a cancer clinical trial or to stop treatment at any time without penalty
 

How to know if a cancer clinical trial is right for you.

There are many factors to keep in mind when considering a cancer clinical trial.

As with any important decision, it’s a good idea to think about the risks and benefits of joining a cancer clinical trial. This video encourages you to ask your medical team about all of your treatment options, including cancer clinical trials. Trial participants, doctors, and patient advocates explain the factors you’ll want to keep in mind as you consider your treatment plan.

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“I’ve always advised patients...when the circumstances weren’t urgent, to take time to understand their disease and to evaluate the alternatives.”  —Sandra Horning, MD; oncologist and chief medical officer

What to ask your doctor(s)

Asking The Right Questions Keeps You Involved In Your Care

A cancer diagnosis is often overwhelming, and it’s sometimes hard to gather your thoughts and know the right questions to ask. This video talks you through some of the questions it will be helpful to ask about your cancer, your treatment options, your doctor, and about whether participating in a cancer clinical trial is right for you.

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“Talk to your doctor and say, ‘Tell me my full options.’ Raise questions. Be a pain in the neck. That’s what the doctor is there for.” —Arthur Caplan, PhD; medical ethicist
 

Find Out If A Clinical Trial Is Right For You

1. Get Specific: About Your Cancer Details

  • Type of cancer
  • Stage
  • How it's treated
  • Prognosis

2. Get Guidance: About Your Options

  • What the standard of care is today
  • Doctor’s recommended treatment
  • Treatment risks and benefits
  • Treatment goals
  • Which clinical trials are available for your cancer

3. Get Informed: About Cancer Clinical Trials

  • Research available clinical trial options
  • Understand the goals of the available trials
  • Determine if a trial is appropriate for you
  • Seek a second opinion if necessary
  • Talk with loved ones about your options and concerns
  • Ask about the study location, costs, and time commitments
  • Find support services online and through your doctors

Rules And Procedures Are In Place So That You Will Receive High-Quality Care

Before a single patient can join a trial, many different experts must approve every detail of the study—from why it’s being done to how often patients should be monitored. Once the trial begins, more unbiased experts provide oversight to check that the rules of the trial are being followed and patients’ rights are protected. This video features doctors and patient rights advocates explaining the high standards by which trials are developed and run.

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“I explain...that when they're on a clinical trial, they're going to be followed very closely by...specific guidelines.” —Daniel P. McKellar, MD; surgeon and Commission on Cancer chairman

Informed Consent Describes The Study Process, Potential Risks And Benefits, And Your Rights As A Participant

If you are eligible and decide to join a trial, you will be required to review and sign the informed consent forms. This can be an overwhelming process, but it is how you will learn all the details of the trial, including the potential benefits and the possible risks, and give your permission to be treated. This video features patients, doctors, and patient rights advocates who offer tips and insights to help you navigate the process of informed consent.

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“When I received the stack of papers...it made me realize this is really serious. But then...it was actually a good feeling to know that this was not something that was being done lightly.” —Rose Gerber; trial participant

Information And Support Are Close At Hand

Because so many people have been affected by cancer, there are many reliable and helpful resources to help you through your cancer journey. In this video, trial participants and doctors help you find the people and resources that may be helpful in educating you about cancer clinical trials.

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“The first thing is to hold on tight and be optimistic and to get very engaged and educated about your cancer.” —Jack Whelan; trial participant

Reliable Resources To Help Along The Way

First, talk to your doctor

Your healthcare team is the best source for information about your treatment options, including cancer clinical trials. There are many questions you’ll want to ask your healthcare team when you’re ready to discuss treatment options. Print this helpful Discussion Guide and bring it to your next appointment so that you don’t forget anything important. Record your answers on the form and keep it handy for future reference.


Where to find information about cancer clinical trials

These clinical trial resources will help you find trials that might be right for you.


Support services

These trustworthy sources provide assistance with trial-related costs, which may not always be covered by insurance.

Practical support

Financial support

Additional nationwide support organizations


Don’t go it alone

There are millions of people just like you who are ready to ACT against cancer. These organizations provide advocacy, information, awareness, fundraising opportunities, and a community of like-minded people touched by cancer.

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