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Gus' Grey Matters

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My Story

Last updated: Friday, May 15, 2015

Gus is 6 1/2 years old, it is May, 2015

On Monday October 1, 2012 he was diagnosed by MRI with a brain tumor growing on his brain stem and causing hydrocephalus, resulting in headaches located between his eyes and at his temples, and vomiting, both symptoms becoming worse after laying down. He suffered no neurological effects prior to surgery, such as trouble walking, swallowing, facial expressions, or coordination.

On Friday October 5, 2012 in the course of a six hour surgery at Children's Hospital in Colorado his doctors were able to remove the entirety of the tumor.

He completed 7 weeks (33 treatments) of radiation on December 21st, 2012 and a 10 week cycle of aggressive chemotherapy on Wednesday, March 20th 2013. He was released from treatment in May that year, months sooner than expected.

We have had many successes in the course of discovering and removing this tumor, the first being how soon we caught it. It is an absolute blessing that we caught it before he had neurological damage. We were able to not only find it quickly but get it removed quickly, and completely, without consequent damage to his brain from the surgery.

Though 50% of children with this kind of surgery ultimately have a shunt placed in their heads to drain the CSF that the brain can no longer absorb, Gus was not among them, his brain recovered very quickly.

Two years, seven months, and thirteen days after his original diagnoses, a routine follow-up MRI showed two new tumors.

That brings us to today, May 15th, 2015. We begin his fight anew.

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