Sterling Chronicles
Sterling Chronicles · Thursday, August 16, 2012
RockStar Status

Team RockStar

 

Sterling is a RockStar. Paul and Sarah are RockStars. We are Team RockStar. 

 

Sunday afternoon after the dust settled from LeeLee’s first surgery we started referring her to her as an Amazing RockStar. It grew from there. It became evident that every member of our family and our medical team are rockstars. 

 

We decided on Monday that we would participate, as a family, in the CHOC walk as Team RockStar. CHOC has done so many amazing things for our family. We owe them the world because after all they saved our little world. Sterling, she is now the center of our world. The...

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Sterling Chronicles · Wednesday, August 15, 2012
A Tale from Aunt Nell
I don’t even know where to begin.  Having never imagined our family would be in this spot, I don’t even know what to say. So I will tell you a little about us, my husband and I.  Uncle Matt and Aunt Nell.  When we were told we were going to have a niece after having three nephews we were quite excited.  And when we were asked to be the godparents of our niece and nephew we were honored and a bit nervous at the responsibility.  But now, knowing Sterling and her sweet brother, we feel even more honored to have that title.  Both of these little ones are such joys and treasures, and we are...
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Sterling Chronicles · Wednesday, August 15, 2012
What Mimi Saw

the way Mimi saw it...

 

yesterday we couldn't get the girl to cheer up... :0( 

 

"build a bear is coming" Mama says.... "wake up Sterling" "build a bear is coming to the playroom you can make your very own bear or doggie or there's even a monkey!" "don't you want to make your own bear?"

 

Sterling curled up into a grumpy little ball "no" she says emphatically. 

 

this little exchange goes on for sometime... "come on Sterling don't you want to go?" "no" she says

 

now Mimi knows how much this means to mommy and agrees this just might be the thing to cheer her up for a while. Mimi sees what...

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  Sterling Chronicles
Sterling Chronicles · Wednesday, August 15, 2012
I'm coming home...

Day 17

 

Our journey  seemed to be at a stand still, slow motion at best. We have conferenced with many Doctors and medical staff I just can’t keep people straight in my head. Yet we sit here and wait...and wait...and wait. Time neither stands still or moves. We suddenly have been transported into some strange time continuum. 

 

We got a room mate today. A sweet baby girl nearly a year old who is battling Leukemia. Just one more realization that we are in a place that houses sick babies, children and young adults. Some more tears are shed while we wait.

 

We also had an unexpected visitor,...

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Sterling Chronicles · Monday, August 13, 2012
Cancer Sucks

No, this post is not a fun one. Not an uplifting one. One that shows the raw emotion of where I am at. I a not even going to pretend that I can speak for our whole family on this one. Its all me. Unadulterated, unedited me.

 

Two nights ago we were blessed with an amazing night nurse named Sili. She has a wonderful spirit and brings instant happiness to the room. I happened to look up and notice a pin on her lanyard. it read "cancer sucks" in Disney font. I mentioned how much I loved the pin. She began to tell me how it was made by a former patient's mother. The patient is no longer here....

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  Sterling Chronicles
Sterling Chronicles · Monday, August 13, 2012
Opa's Views

Opa’s View’s

 

My Dearest Sterling,

As I left CHOC tonight (day 16) and rode the shuttle to my truck- I could still see your smile as you hugged my neck and we kissed goodnight.  I could see your hand reach up and as I left kisses in your hand (to save for later) you waved goodbye.  Sleep well my little princess for tomorrow our journey continues…..

Love- Opa

  

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Sterling Chronicles · Monday, August 13, 2012
Weary yet grateful

Day 16-some more

 

Emotionally spent. I think I have said that before if not on the blog for sure on FB. 

 

You know that feeling when you are really tired and are in a room full of people aware of the surroundings but you don’t really feel like you are there. Almost like you are dreaming. Only it is reality. Yea, that feeling right there. That is how I feel. Everything changes moment to moment, hour by hour and day by day...sometimes the journey drags on in slow motion.

 

Sterling’s LP went very well today. She was in and out of the procedure room in no time. She has been sleeping on and...

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Sterling Chronicles · Monday, August 13, 2012
And the beat goes on...

Day 16

 

Today we prepare sweet Sterling for her Lumbar Puncture (LP)

 

Lumbar puncture (spinal tap) is performed in your lower back, in the lumbar region. During lumbar puncture, a needle is inserted between two lumbar bones (vertebrae) to remove a sample of cerebrospinal fluid — the fluid that surrounds your brain and spinal cord to protect them from injury. A lumbar puncture can help diagnose serious infections, such as meningitis; disorders of the central nervous system, such as Guillain-Barre syndrome and multiple sclerosis; or cancers of the brain or spinal cord. Sometimes doctors...

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  Sterling Chronicles
Sterling Chronicles · Monday, August 13, 2012
Opa's Views

I am Opa- grandfather in German

When I first meet Sterling our brown eyes connected and I knew that she was mine and she knew I was her's.  It has been a love affair ever since.

Yesterday she allowed me to sit on her bed with her will she and Mimi were finsihing some extense crafting projects.  I ended up with stickers on my hand and it was a joy to see her being so creative to the point of her dismantling Mimi's creations to create her own.

As time passed it was soon to be nap time- a good thing to do on a Sunday afternoon.  We put away the crafting toys and she crawled up, tucked her head...
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Sterling Chronicles · Sunday, August 12, 2012
Overload

Day 15

 

Reading and amassing information. Perusing blogs of others who have or had ETANTR. My heart is heavy. Heavy for my LeeLee girl. Heavy for my brother and sister. Heavy for my parents, Sarah’s parents. The aunts, uncles and cousins that love her so much. For myself. For her Ami. I am not sure how much more information my brain can hold. It feels like it is on overload. I want to pick sweet Sterling up and run far far far away from all of this madness. Somewhere where her cancer does not exist. That is not feasible. So I wade through more information. Trying to figure out the roadmap...

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