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SC

Sterling Chronicles
We are Team RockStar!!

SC

I'm coming home...


Day 17

 

Our journey  seemed to be at a stand still, slow motion at best. We have conferenced with many Doctors and medical staff I just can’t keep people straight in my head. Yet we sit here and wait...and wait...and wait. Time neither stands still or moves. We suddenly have been transported into some strange time continuum. 

 

We got a room mate today. A sweet baby girl nearly a year old who is battling Leukemia. Just one more realization that we are in a place that houses sick babies, children and young adults. Some more tears are shed while we wait.

 

We also had an unexpected visitor, rather two unexpected visitors. The first was one of our amazing residents from the sixth floor. This was her second trip down to see us as we hit dreaded floor three. The last time we visited with her we had not had our massive pow wow with the Neurological Oncology team. There were still so many unknowns. Today, however the awful news of little sisters ETANTR loomed over us all. The good doctor cried as we revealed the treatment options and the plans we were making. In her we had found a friend. The second visitor was Mickey Mouse. Yes, the one the only Mickey Mouse. We took pictures and laughed, that is a happy memory.

 

The day wore on and our nurse coordinator came in. She too is nothing short of amazing. We talked, cried and laughed. More importantly however we laid out our plans and started to move forward. Yes, finally, our journey was again moving forward. 

 

Slowly but persistently we inched toward the fork in the road of our journey. As relieving as that was it was scary as all get out. 

 

Mimi and I ventured upstairs to floor six. The place we called home for what seemed like eternity. The floor that saved her life. We had unfinished business with a sweet PICU nurse who we also call friend. Our hearts sank. We had just missed her. She was out taking another patient to surgery. Silent prayers were offered up as it seems like just yesterday Sterling was the one headed to surgery. We left our Thank You note and donations we had collected for her little ministry and we found ourselves standing again on floor three. Waiting. 

 

Then just as quickly as we began this crazy journey being admitted to CHOC, we were leaving. We were coming home. Sterling was coming home. 

 

Today, Wednesday August 15, 2012 marks day 1of the being home part of our journey. As I gaze upon sweet Sterlings face it is almost as if I can hear her say “ I'm coming home...” 

 

And thus the journey continues...

 

All that being said here is a note from Papa...

As you know our sweet baby girl was diagnosed with terminal cancer. She had a rare tumor that in all likelihood will regrow and again press on her brain as well as reach new areas throughout her spine. The only treatment that can be offered to us here has a very low chance of helping and if she were to survive the cancer and the treatment she would have to live with severe long term effects. 

 

Given these realities we have chosen to come home and live out her life to the fullest. This does not mean we will forsake treatment all together, it simply means that the treatment as offered is not what we consider acceptable. There are many things we are researching and a few doors we are still waiting to knock on; in due time we will have finalized our action plan and will continue to fight this thing with all we’ve got. But most importantly we are trusting in one that is greater then all. We thank you all for your continued support as we know that there are many unknowns ahead of us and without your prayers and efforts we will have little success. 

 

With all my

Sterling’s Papa

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