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  Emilia Dameshek
Emilia Dameshek · Jun 1, 2016 at 2:21 pm
We will remember her

We will never find words remotely adequate to convey our gratitude for the love, support and outpouring of shared grief in the past 2 years and 11 months while Emilia fought cancer and last week when she died. The depth of sadness and anticipatory grief we have felt pales in comparison to the loss we are now mourning. Having over 400 people come to see us the West Shore Country Club and then seeing a ballroom filled with over 800 friends, family, teachers, co-workers and even some strangers, was overwhelming but truly helped us get through the night and the days since. Emilia’s friends and family who were part of the service made us laugh through the tears and we are honored that so many people joined us in remembering her short life. We would especially like to thank our friends who organized all the details of such a beautiful service and visitation night and the effort they put forth for us so that we were not burdened at such a sorrowful time. Flowers, programs, snacks, the locations, pictures, slide shows, guest books, food at our house and much, much more. They thought of everything and we are so grateful that they did that for us.

Now that the ceremony is over and we have returned to work and school, we are counting on our memories and the countless photos and videos as well as the stories from her friends, to keep us going. Some of our happiest memories with Emilia took place after she was diagnosed with cancer; going to Hawaii, being at the beach in Delaware, dancing with Gym Club at THON and just hanging out with people she loved. The video tribute Emilia’s friends made for the service was the perfect mix of all those memories and we loved how hard we were laughing at all their memories, and especially at Max. If he can still be silly and goofy and smile at this time, so can we.

Cousin Dave wondered why we let our kids on golf carts and what kind of trouble they were getting into here in Pennsylvania and it’s funny that cancer is why we rented that golf cart. Last October we went camping with 7 families to celebrate Emilia’s 100 days since her bone marrow transplant. Reaching the 100 day mark is a big milestone for transplant patients and we wanted to mark the occasion but because she was immune suppressed it wasn’t easy thinking of a way to celebrate where she would still be safe from germs but also have fun. Camping fit the bill and the bonus was that there was a Halloween theme to the weekend with trick or treating, hay rides and a golf cart that we rented for the entire weekend. You can’t imagine the squeals of laughter and the fun those kids had taking turns piling into the golf cart and making endless loops through the campground looking at the decorations, being chased by a dog and later being sought out as speedsters by the campground caretakers. Parents and the one licensed teenager took turns driving them around on a beautiful fall weekend and on those days, Emilia was just one of the kids laughing and making memories with her friends but also being celebrated for the long months of treatment she endured for a second time and looking forward to a bright future free from cancer. We will never get to see what the future may have held for her but we will treasure every memory we have. Some people say that cancer changes their lives in a way that they would never undo what they endured, they become glad for it and wouldn’t change it. I realize now that only people who get to live say that. If we could go back in time we would change it all but we can’t so we will be grateful that so many were with us along the way, helping us through the long days and nights of treatment, the long years we all suffered with her and the days where she was healthy and we made new, happy memories. In Judaism when someone dies people say, “ may her memory be a blessing”. Emilia’s memory will be that and so much more to us. As heartbroken as we are, we will try to smile through the tears and remember all the good she was and brought out in people and how she united so many. Thank you for loving our girl with us and grieving her loss at our sides. Mitchell, Natalie and Max

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  Emilia Dameshek
Emilia Dameshek · May 21, 2016 at 6:20 am
Details on services

Here are the details for the services next week. Wednesday, May 25 visitation at the West Shore Country Club, 100 Brentwater Road Camp Hill from 4-8 pm with a memorial service on Thursday, May 26 at 6 pm at the Radisson Hotel Harrisburg, which is actually located in Camp Hill at 1150 Camp Hill Bypass, Camp Hill, PA 17011. Immediately prior to the service on Thursday we will be seeing visitors from 4-6 pm at the hotel. For al the kids, please come as you are. If you want to wear an Emilia or THON t-shirt, that's okay! Please consider donations to The Four Diamonds Fund, 90 Hope Drive, A120, P.O. Box 852, Hershey, PA 17033 or Chemowarrior Foundation, 311 Spring Hill Lane, Lebanon, PA 17042 or oneline at www.fourdiamonds.org and www.chemowarrior.org

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  Emilia Dameshek
Emilia Dameshek · May 19, 2016 at 9:10 pm

Emilia died peacefully at 5:40 pm tonight. Our hearts are broken but she is no longer suffering. We are grateful for so much love and support and will let you know about the services when we know the details. Love to all.

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  Emilia Dameshek
Emilia Dameshek · May 19, 2016 at 9:09 pm

Emilia died peacefully at 5:40 pm tonight. Our hearts are broken but she is no longer suffering. We are grateful for so much love and support and will let you know about the services when we know the details. Love to all.

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  Emilia Dameshek
Emilia Dameshek · May 17, 2016 at 6:33 pm
Day 74

We haven’t posted an update since Mother’s day because nothing has changed over the past 10 days.Emilia continues to fight gvhd and after trying multiple drugs, treatments and therapies she has not gotten better and her body is beginning to shut down.She hasn’t responded to treatment the way the doctors had hoped and now we shift our focus on making sure she stays as comfortable as possible as we approach her final days or weeks of life.There are no words to describe the heartache and despair we feel as we sit beside her during this time but we know that the doctors have done all they can for her as she has fought over and over and over.We have no regrets and she has had the best care possible by a group of people who truly love her and our family.Our team has tried everything they could and after fighting cancer three times in less than three years, it has become too much for her young body. They have advised us on what to say to Emilia and Max and how to make this transition as smooth as possible.Today we had some really tough conversations with them both and they understand what is happening.Child Life specialists and palliative care along with our oncology team at the hospital will be at our side to help us all. We are not sure how much time remains with her but when the time comes we will need to be very sensitive to Max and all the kids who love her so much.Our school district will make counselors available to kids who need to talk or cry and we will make sure any updates happen after school when her friends are home with their parents. We will not be accepting visitors at the hospital at this time and hope all her friends can recall the last time they saw her and remember her as she was, happy and healthier. You are welcome to share your favorite memory of Emilia in the comments below.Feel free to text us pictures you have of her and though we may not respond, please know that we do read every email, text and comment and will never be able to express our gratitude to every single person who has reached out to us over the years. We are so loved and supported and you have all helped us along the way.Xoxo Mitchell and Natalie

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